The doc called about the results of Baby's last TEDDY tests.  Not quite that simple because of course there had to be some communication issues but the long and short of it is that Baby now has 2 out of the 3 antibodies showing up.

She has a 50/50 chance of developing Type 1 diabetes.

Again the positives of being here in Denver raise their head because:

They want to schedule a glucose tolerance test for her.  At Children's.  They will put in an IV so they won't have to stick her ALL SIX TIMES (because they do a -10, 0, after drinking and each hour for the next 3 hours) and she'll get to watch movies and play video games but it will be fasting so of course it will be fun.  But it's free.

They will also be giving me a meter, strips, etc (free) so that I can test her blood sugar when ever I feel like her behavior is off.  I started laughing hysterically because her behavior has been "off" for some time now.

She will also be entered into a prevention study involving oral insulin.  Of course she could get the placebo but . . .

Quietly Having a Meltdown

Glucose tolerance test set for the 10th.  She'll have to miss a swimming lesson AND I better not have a job starting before then.  No, they won't do it on a Saturday.  Seriously.  Do they really think that everyone can just drop everything?  If I were working there'd be no way I could take her.

I'm also mad about the swimming lesson because I know she loves it.

I was wrong about the timing - it's -10, 0, after drinking and then every half hour so will only take two hours and I can get her in at 7:30 (early morning!) so she won't have to go too long without eating.

Besides the sugar they will do another A1C, antibody testing (pray for low numbers!) and test her for another gene that could be protective.  Hopefully I have it and she'll get it from me!

Won't get results for 4-6 weeks though.  Just in time for her next TEDDY appointment at the end of October it seems.

Just got back from Baby's quarterly TEDDY appointment.  RG was 131 (half and hour to an hour after finishing a cup of orange juice) and A1C was 5.1  Looking good!  They told me that since she is positive for the one antibody she'll have to continue doing the quarterly draws even though normally she'd drop to twice a year once she turned 4.

This served to remind me why I don't want to move from the area.  I start thinking that maybe I'd have a better time finding a job if I were willing to move.  And then . . . well if we moved she'd no longer have the free monitoring of her blood sugar AND her connection to the Barbara Davis Center for Juvenile Diabetes.  Right now she's got it made in the shade should she end up developing diabetes.  Immediate access to all the latest research, products and support systems.  We move and it's all gone.

TEDDY

Baby was a rock star as usual.  Played quietly while I talked to the researcher and went over her 3 day diet record.  The researcher (RN) kept saying she was so "sweet", "cute", and that she wanted to "eat her up".  It started when I was helping Baby put her shoes back on after her weight and height were checked.  Baby told me she loved me and the RN was floored.  LOL. 

Speaking of measurements, she was 38.5 inches and 35 lbs.  Glucose was 110 and A1C was 4.8.  Beautiful numbers.

TEDDY

Major suckage.  Got the call that Baby's one antibody level is still elevated.  There IS the possibility that it could go back to normal but it's not looking good.

TEDDY

Baby threw up in the car on the way to her appointment.  No temperature etc so no clue as to why.  Just gonna have to watch her today and give her bland foods in case it's a tummy bug.  Good thing I had a change of clothes in the car!  She also refused to smile for her picture! (They take one at each visit)  But she was her usual champ self during the blood draw.  She's gained weight to 33 lbs.  Up 3 in the last 3 months but she'd been at 30 for the 6 months prior.  She also grew an inch!  Up to 37 inches!  No wonder all her clothes look too small all of a sudden.  Glucose was 97 (none fasting) and her A1C was 4.9 so those numbers were great.  Now to just wait 4 to 6 weeks for the antibody results and hope the one positive goes back to negative!

Turns out that one of the three antibodies that indicate the beginnings of the war on the pancreas (type 1 diabetes) IS slightly higher then normal.  At her next appointment in July they will do an  A1C test etc on her along with her normal tests.  It is possible the the level will return to normal and will end up being nothing but we are definitely going to have to keep an eye on her sugars for awhile.  I just hate the idea of having to give my little girl shots etc.