Tuesday, August 31, 2010

The doc called about the results of Baby's last TEDDY tests.  Not quite that simple because of course there had to be some communication issues but the long and short of it is that Baby now has 2 out of the 3 antibodies showing up.

She has a 50/50 chance of developing Type 1 diabetes.

Again the positives of being here in Denver raise their head because:

They want to schedule a glucose tolerance test for her.  At Children's.  They will put in an IV so they won't have to stick her ALL SIX TIMES (because they do a -10, 0, after drinking and each hour for the next 3 hours) and she'll get to watch movies and play video games but it will be fasting so of course it will be fun.  But it's free.

They will also be giving me a meter, strips, etc (free) so that I can test her blood sugar when ever I feel like her behavior is off.  I started laughing hysterically because her behavior has been "off" for some time now.

She will also be entered into a prevention study involving oral insulin.  Of course she could get the placebo but . . .

Sunday, August 1, 2010

Quietly Having a Meltdown

Glucose tolerance test set for the 10th.  She'll have to miss a swimming lesson AND I better not have a job starting before then.  No, they won't do it on a Saturday.  Seriously.  Do they really think that everyone can just drop everything?  If I were working there'd be no way I could take her.

I'm also mad about the swimming lesson because I know she loves it.

I was wrong about the timing - it's -10, 0, after drinking and then every half hour so will only take two hours and I can get her in at 7:30 (early morning!) so she won't have to go too long without eating.

Besides the sugar they will do another A1C, antibody testing (pray for low numbers!) and test her for another gene that could be protective.  Hopefully I have it and she'll get it from me!

Won't get results for 4-6 weeks though.  Just in time for her next TEDDY appointment at the end of October it seems.